Diagnosed with vision loss and a syndrome so rare that it doesn’t yet have a name, Lucy is now coming along in leaps and bounds with expert early intervention from RIDBC.
Lucy has microphthalmia, a very small right eye, which has no vision. At three months of age she started receiving support from RIDBC Early Learning Program (Vision Impairment).
“Until we began accessing RIDBC’s services we didn’t know that Lucy’s left eye – which looks normal – didn’t really have any vision either,” said Lucy’s mum, Laura.
“Our sessions with RIDBC were amazing. Lucy just came along in leaps and bounds.
We learned so many important things that seemed simple but were so essential – like using high contrast black and white pictures to stimulate Lucy’s vision and to position her with the light behind her to optimise her sight.”
Now Lucy is two and a half years old and exceeding all expectations.
“Support from an early age really has been key,” said Laura. “Our RIDBC Consultant, Vicky O’Rourke, has been amazing. She pushes Lucy and pushes me to push Lucy. That has really seen her thrive.”
“Now Lucy knows the alphabet and can recognise numbers one to ten even if they are out of order! We’re currently working on her identifying objects that are the same colour but a different shape. This is stretching her to use her vision, not just her hands, to find the information she needs.”
Laura is hopeful for the future.
“We don’t yet know what the future holds for Lucy or what her vision will do, but she is a real extrovert. She just loves people, she loves getting out and about!” said Laura.
“I just want the best for her – to encourage her to do as much as she can. I definitely hope that she will be able to go to a mainstream school. We have so much hope for her now. I have this little girl with a fighting spirit who won’t let anything hold her back.”